Living with Sarcoidosis

Well my road to sacoid started with the flu in Feb 09. From the flu I got a secondary infection of pneumonia
From that just feeling sick all the time and tired. Severe pain in my ribs till this day. Finally my feet and ankles swelled up, possible blood clots they said. So that led to xray my chest again which showed all lymph nodes swelled up around my chest. They said it could be lymphoma. Well after tons of other test and biops.

It is our friend sarcoid. which is another name for why. my systems is shortness of breath alot. the medicine they gave me helps with the coughing spells thanks God. The more you move the shortness your breath gets and that stinks but hopefully I will get used to it.

I haven’t been able to uses my voice since april. most often I am hoarse they say it is acid reflux but I read it can also be this sarcoid. You get tired alot but guess you alive be happy.Just got to learn how to live with it.

That is the hardest to learn how to live different. I don’t know if it affects your muscles but my legs feel whobble alot. Well that is my story boring but true thanks for your time.