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Living with Sarcoidosis

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Sarcoidosis
by: Cynthia on Mon, Jul 13 2009
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Hi, I’m Cynthia and I have Sarcoidosis sarc is a autoimmune diease inw hich Lypmh Nodes can develop in the major organs and muskeltal parts of the body, I don’t like when i go into a flare(where the body is in pain, fever,fatique.) But I do know that with the attitude that I live with now is like I have to stay strong for my kids, husband and me.

I continue to live in normal setting which allows me to do the things I love such as going on trips, going to plays,concerts and just doing what I fill like doing.I do know I have to be the BIG part in my feeling well process and I always keep God in my life, heart and stay in prayer. I do love to read, skate and dance, which sometimes that can be hard. My son travels a lot because he is in karate he helped me get my Orange belt!! I love watching him on tournaments and receiving his troyphies, newspaper stories and just feeling proud, because there are some tmes that I can’t go because of the Sarc flares i just want to be able to not build a relationship with this thing called Sarcoidosis
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  1. Thu, Sep 24 2009
    Hi I've been on predisone for 14 years, sarcoid is always active and moving to different parts of my body. Right now Im on 20 mgs, because I've been ...Read
  2. Wed, Sep 23 2009
    I was sorry to hear that methotrexate didnt work for you, I hate being on steroids, drives me crazy and my blood pressure goes sky high. What steroid...Read
  3. Tue, Sep 22 2009
    Hi My name is Brenda, new to the forum. I was diagnoised in 1995, sarcoid activite the whole time. I've been on steroids since 1995. The drs put me o...Read
  4. Sun, Sep 20 2009
    I was diagnosed with sarcoidosis sept 1999. The first time was the worst because I was too sick to take chargeof my own treatment. I seem to always ha...Read
  5. Mon, Aug 10 2009
    hi...i was just diagnoised with sarcoidsis.I am 41,they told me at first it was lung cancer they scared the shit out of me.I spent 3 weeks in the hosp...Read

July 2009

  • Sarcoidosis - by Cynthia - (Mon, Jul 13 2009)
    Hi, I’m Cynthia and I have Sarcoidosis, sarc is a autoimmune diease inw hich Lypmh Nodes can develop in the major organs and muskeltal parts of the body, I don’t like when i go into a flare(where the body is in pain, fever,fatique.) But I do know that with the attitude that I live with now is like I have to stay strong for my kids, husband and me. [more..]

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