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Living with Sarcoidosis

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New to Sarcoids/have questions
by: vb on Mon, Dec 15 2008
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I was diag. with sarcoids in june. My problems started with my eyes. Had a biopsy done on my eye. Came back sarcoids. I was on Steriods and have been slowly weaned off of them. I stil have some eye pain, but eye dr. doesn’t want to put me back on steriods.

My question is I’ve been having yhe following symptoms and wonder if they are related to sarcoidosis I have a constant sore throat Pain in my knees and feet. Last night the pain in my left foot was so bad I could barely walk. Pain is always there, just sometimes it’s worse than others. I had MRI’s,cat scans, blood work, pluminary work ups, etc. I have enlarged lymph nodes in my chest.

Just wondering if anyone has any advice. I have an appt. with rheumatologist the end of Jan.(1st avail. appt.)


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Comments
  1. Sat, Jan 24 2009
    The sore throat, fatigue and foot pain are classic symptoms of Lyme disease with a co-infection of Babesia. You can get some great info on this at www...Read
  2. Fri, Jan 16 2009
    i'd like to know about new versions about the etiology agents of sarcoidosis .....Read
  3. Sun, Dec 21 2008
    I have been doing a lot of research on sarcoidosis since my 38 year old daughter was diagnosed. There seems to be two disparate views - Western medic...Read

December 2008

  • living with sarcoid - by tiffany green - (Wed, Dec 17 2008)
    I am a 30.year old female I was recently officially diagnosed with sarcoid of the lungs the dr’s believe I’ve been having it since 2006… [more..]
  • New to Sarcoids/have questions - by vb - (Mon, Dec 15 2008)
    I was diag. with sarcoids in june. [more..]
  • sarcoidosis - by L.G. - (Wed, Dec 10 2008)
    I was diagnosed with Sarcoidosis about 11 yrs ago at the age of 28 (white female) I went through a gammot of symptoms over the course of about 5 mth until they finally discovered the problems that were occuring with my eyes went hand in hand with all of the other things I had been experiencing the 6 mths prior and told me it was Sarcoid. [more..]

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