Living with Sarcoidosis

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Living with Sarcoid
by: Barbara on Wed, Nov 19 2008

The first time I was told I had sarcoid was in 1988 - it started off in my eyes, I thought I was going blind. Luckily, my friend was a doctor and immediately realized that I needed to see an eye doctor as well as a lung specialist. anyway, it took 6 months for them to make sure I had sarcoid. I was on steroids for over 6 months - gained weight, etc.

Second time was worst 2002- this time, it attacked my pituitary gland. No one really understood how I was feeling. Headaches, lose of weight - my thyroid liver, pancreas all stopped working. I was put on steroids for over 6 months again. I have been having a hard time because most people don’t know or understand how I am feeling. Last week, I went for my yearly MRI of my brain and received a card from my new doctor that there is evidence of sarcoid in my brain again.

I am luckily that I have insurance and have retired as a teacher. I am so tired.

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November 2008

Living with Sarcoid - by Barbara - (Wed, Nov 19 2008)
The first time I was told I had sarcoid was in 1988 - it started off in my eyes, I thought I was going blind. Luckily, my friend was a doctor and immediately realized that I needed to see an eye doctor as well as a lung specialist. [more..]

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