Living with SarcoidosisThis section is a place to share stories about Living with Sarcoidosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Living with Sarcoid 
The first time I was told I had sarcoid was in 1988 - it started off in my eyes, I thought I was going blind. Luckily, my friend was a doctor and immediately realized that I needed to see an eye doctor as well as a lung specialist. anyway, it took 6 months for them to make sure I had sarcoid. I was on steroids for over 6 months - gained weight, etc. Second time was worst 2002- this time, it attacked my pituitary gland. No one really understood how I was feeling. Headaches, lose of weight - my thyroid liver, pancreas all stopped working. I was put on steroids for over 6 months again. I have been having a hard time because most people don’t know or understand how I am feeling. Last week, I went for my yearly MRI of my brain and received a card from my new doctor that there is evidence of sarcoid in my brain again. I am luckily that I have insurance and have retired as a teacher. I am so tired.
November 2008
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