Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Sarcoidosis

This section is a place to share stories about Living with Sarcoidosis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


I believe
by: Pamela on Wed, Aug 27 2008
Facebook Twitter

I too think I have this disease. Many unexplained medical conditions have finally made sense. After going to the ER and having a CT they found nodules on my lungs and thyroid. Also some irregularities on my liver. Ater reading the ER notes it lead me to what I believe this is. My primary DR. always ignored me when I told her about my syptoms.

I am going for a PET scan on Thursday hopefully to finally find out the truth. I was told in the ER that I had a mass in my back and lympnodes and would need a biopsy. I cried for hours. My daughter also has Interstitial Cystitis I only hope that I may have helped her in someway as she is having a hard time with this. Thank You for reading this, I will write again and let you know what the DR’s say.
Facebook Twitter

Comment on this

Comments
    There are currently no comments.

August 2008

  • I believe - by Pamela - (Wed, Aug 27 2008)
    I too think I have this disease. Many unexplained medical conditions have finally made sense. After going to the ER and having a CT they found nodules on my lungs and thyroid. [more..]
  • need hope - by erica - (Wed, Aug 27 2008)
    I am 34 years old and a mother of two children. I was told I had sorcodoces [sarcoidosis] last year a month before I turned 33. [more..]
  • Overwhelmed - by NS - (Tue, Aug 26 2008)
    I was recently diagnosed with Sarcoidosis - June13,2008. Discovered by a Pre-Operative xray. [more..]
  • Sarcoidosis: The story of a family infected. - by Bennie - (Tue, Aug 12 2008)
    When it comes to sarcoidosis, it’s a real shame that the professional medical field can’t stop and think for a moment “let’s listen to the patients!” I remember how I had been repeatedly misdiagnosed for four years before finally every medical test came back abnormal. It all started in 1977. [more..]
  • Genetical Sarcoidosis - by Diundra - (Mon, Aug 11 2008)
    My name is Diundra and I have been diagnosed with this disease for about five years. My mom had this disease only she had it in her lungs. When I was first diagnosed with this disease my mom had just died. I was told that I probably always had it but due to the stress of the death it was prob. supressed. [more..]

Archives:

  • 2009 January February March July August October November
  • 2008 February March April May July August September October November December
  • 2007 May June July August September October November

    • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)
    printer friendly versionprint this email to a friend  email this AddThis Social Bookmark Button