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Living with Sarcoidosis

This section is a place to share stories about Living with Sarcoidosis

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Overwhelmed
by: NS on Tue, Aug 26 2008
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I was recently diagnosed with Sarcoidosis - June13,2008. Discovered by a Pre-Operative xray. I am still sitting under a cloud trying to sink this all in. Because little is known about the disease, it’s difficult for me to function on a daily basis. I am fearful of planning too far ahead, ie vacations because I don’t know what to expect. This has and is very hard for me to deal with as I have always taken my health very seriously - excercise, non smoker/drinker, very healthy eater. My thanks to those who have shared there stories as it has provided some reduction in the unknown.
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August 2008

  • I believe - by Pamela - (Wed, Aug 27 2008)
    I too think I have this disease. Many unexplained medical conditions have finally made sense. After going to the ER and having a CT they found nodules on my lungs and thyroid. [more..]
  • need hope - by erica - (Wed, Aug 27 2008)
    I am 34 years old and a mother of two children. I was told I had sorcodoces [sarcoidosis] last year a month before I turned 33. [more..]
  • Overwhelmed - by NS - (Tue, Aug 26 2008)
    I was recently diagnosed with Sarcoidosis - June13,2008. Discovered by a Pre-Operative xray. [more..]
  • Sarcoidosis: The story of a family infected. - by Bennie - (Tue, Aug 12 2008)
    When it comes to sarcoidosis, it’s a real shame that the professional medical field can’t stop and think for a moment “let’s listen to the patients!” I remember how I had been repeatedly misdiagnosed for four years before finally every medical test came back abnormal. It all started in 1977. [more..]
  • Genetical Sarcoidosis - by Diundra - (Mon, Aug 11 2008)
    My name is Diundra and I have been diagnosed with this disease for about five years. My mom had this disease only she had it in her lungs. When I was first diagnosed with this disease my mom had just died. I was told that I probably always had it but due to the stress of the death it was prob. supressed. [more..]

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