Living with Sarcoidosis

My name is Diundra and I have been diagnosed with this disease for about five years. My mom had this disease only she had it in her lungs. When I was first diagnosed with this disease my mom had just died. I was told that I probably always had it but due to the stress of the death it was prob. supressed.

To make a long story short I just recently was taken off of the prednisone after being on it for four years. I have had so many illnesses from this disease due to the fact that I have it in my liver, lungs, and skin. I don’t deal with the nodules in the skin as much, however, I have been through quite a bit of everything else. The problem I am having at this moment is my eyes are starting to bother me. It feels like something is in my eye, and the sun does bother me, and aches a little. I get a lot of relief when I put on dark shades even in the house.

This disease is so nerve wrecking and often times has me so stressed out because it’s always something different. Well I don’t have enough room to put all of the things I have gone through since I have had this disease, and since many people don’t know about it I really don’t have anyone that I can talk to. I am concerned because I was told it is more frequent in black females and I have three daughters.

I often find myself crying to my husband and he has to make a lot of sacrifices with his job to go with me to the doctors or to be home with the kids so that I can go to the doctors. Well I hope this will help someone out there who thinks they are all alone. Become a strong believer in God and he will see you through. If it wasn’t for my faith in God, my supportive immediately family, my pastor and church family, I would probably would be in a crazy house or dead.

I weighed 83 pounds in 2004, I had Bell’s Palsy, I learned that I was diabetic, with my sugar being over 600, and yet I am still in the land of the living. Thank you for allowing me to share part of my story and to all that read this God bless you.