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Living with Sarcoidosis

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sarcoidosis
by: beatrice on Fri, May 30 2008
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Hi, my name is Beatrice and 4 years ago I was diagnosed with sarcoidosis I have never smoked in my life. When I went to the emergency ward they diagnosed me. I had red and blue bolts on legs from my knee down and on my arms from my elbows down. My eyes were red and swollen and the pain was unbearable.. I couldn’t walk ten steps and I was out of breath. My hand & feet were swollen and painfull. I prayed to die. It was the most difficult time of my life. I was on cortizone for 8 months. I cannot remember things of my childhood or people. I vomitted almost every day. I lost 44kg in 4 months. Everyting I ate came out. I still don’t know how I got this disease. It was hell…..
I had blackouts and fever almost every day. I am in remission now. hope it never comes back. After all of this I have pain in my joints almost everyday.
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May 2008

  • sarcoidosis - by beatrice - (Fri, May 30 2008)
    Hi, my name is Beatrice and 4 years ago I was diagnosed with sarcoidosis I have never smoked in my life. When I went to the emergency ward they diagnosed me. [more..]
  • Something can be done - by John The Sarcoid Slayer - (Wed, May 28 2008)
    Right for me Dr’s are useless at this disease, they seem to know nothing about it and dont want to: What i know is this, sarcoidosis is a name that is given to this disease. [more..]
  • Sarcoidosis in Scotland - by Joan S. - (Fri, May 09 2008)
    I was diagnosed with sarcoidosis after a 3/12 history of being generally unwell, breathless, and an eye infection. [more..]

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