Living with Sarcoidosis

Right for me Dr’s are useless at this disease, they seem to know nothing about it and dont want to:
What i know is this, sarcoidosis is a name that is given to this disease. what is it?
well granulomas are being made by the bodys immune system to isolate germs & baterias, but these granulomas are supposed to dissolve when the gerrm has been killed, but in sarcoidosis the granulomas remain and cause trouble with the organs they are in:
makes sense so far?
well dr’s are hell bent in dishing out steroids which switch off the immune system and stops producing granulomas, hurraY!!! not so: wHY?
because with the immune system switchwed off the germ /bacterias run riot and proliferate, so when you come off steroids the immune system is fired up again to deal with these germs causing again the undissolving granulomas.
why undesolving perhaps because the germ is able to live within the inhospitable granulomas,
that said the germ has to be killed in order for the body to return to normal, so steroids are not gonna do anything other than a short term fix.
But do you really belive dr’s know this?
no they dont they just follow what protocol they have on their computer screens for this disease which is decades out of date:
I have it and my daughter & also my son but not diagnosed yet and never will at their rate.
i am disgusted at the UK medical system regards this disease and think we need to do our own research:
so here goes:
does any one have bad toe nails you know the fungus type white crumbly toe nails?
this is hard to get rid off and maybe this has got into our lungs.
i am aware that dr’s can do stains etc for this on biospsies but do you think they think of doing it?