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Living with Sarcoidosis

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Sick of Being Sick Too! Sarcoidisis
by: S on Mon, Apr 21 2008
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It has been nearly 5 years since I was diagnosed with sarcoid, we were so happy that it was not lung cancer that the implications of what the condition was did not register. I now have no Colon because the drugs I was but on messed up my system I have gone down to 7 stone in weight to as high as 13stone in this time. Plays havoc with your wardrobe!! Not letting yoour family see how much your struggling. Trying to balance a family a job, I can no longer call it a career, and my health. My frustration levels are so high sometimes I get that lump in my throat and my eys fill up. I cannot give in to it as I do not think I would ever get back. Thats the important thing to remember the good days have to compensate. I try to make sure I do 100%, its trying but don’t give up……..
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  1. Sat, Nov 08 2008
    I too was relieved it wasn't cancer. I am afraid of my future though. I was just diagnosed this month. I am so tired of being tired. I hope you ar...Read

April 2008

  • Glad its Sarcoid - by Scott - (Wed, Apr 30 2008)
    Im a 43 year old male. I had a Mole removed from my back and biopsied. The Biopsy could not rule out Melanoma so I was referred to a surgical oncologist (SO). [more..]
  • Sick of Being Sick Too! Sarcoidisis - by S - (Mon, Apr 21 2008)
    It has been nearly 5 years since I was diagnosed with sarcoid, we were so happy that it was not lung cancer that the implications of what the condition was did not register. [more..]
  • SICK OF FEELING SICK AND HAVING NO ANSWERS - by CAMILLE - (Thu, Apr 17 2008)
    I WAS DIAGNOSED WITH SARCOISOSIS AT 23. I DIDNT EVEN KNOW I HAD IT. NO SYMPTOMS AT ALL. [more..]
  • that one day ! - by Shaniece - (Tue, Apr 08 2008)
    well i am an 18 year old female just graduated.. went in for an biopsy for the eye.. and come to find out that my lymph nodes in my eyes had become enlarged. [more..]

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