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Living with Sarcoidosis

This section is a place to share stories about Living with Sarcoidosis

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How do you cope with Sarcoidosis


by: Susan on Wed, Mar 12 2008

Hi, I am 43 years old and was diagnosed with Sarcoidosis in Jan 08. In Jan 07 I was diagnosed with breast cancer I had a masectomy, did some chemo and thought I was ready to get on with life. I was wrong. I am more tired now than I was on chemo my hips and back ache severely, and headaches come and go all day. I am not sure if my symptoms are caused by the steroids, or the disease, but I can’t take much more. I am a burden to my family, and I hate that I am useless. I am not suicidal, I have a deep faith in God. Why was I told this disease was no big deal??????

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March 2008

  • JUST ASTHMA - by CHAROLETTE - (Wed, Mar 19 2008)
    HI, I’M CHAROLETTE A 35 YEAR OLD MOTHER OF 3 GIRLS, WHO HAS BEEN LIVING WITH SARCORD FOR ABOUT 4 YEARS NOW. THE VERY FIRST YEAR ALL THE DOCTORS I RAN TO DIAGNOSISED ME WITH ASTHMA!! [more..]
  • How do you cope with Sarcoidosis - by Susan - (Wed, Mar 12 2008)
    Hi, I am 43 years old and was diagnosed with Sarcoidosis in Jan 08. In Jan 07 I was diagnosed with breast cancer I had a masectomy, did some chemo and thought I was ready to get on with life. [more..]
  • getting started - by treece - (Mon, Mar 10 2008)
    im a 37 old mother of 2 children with sarcodosis [sarcoidosis] of the lungs. i was told that i had it in 10-07 when i went to the hospital with fever, coughing, for flu. since then i have surfing the internet finding out more about this disease that i have. [more..]
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