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Living with Sarcoidosis

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living with sarcoidosis


by: Elizabeth on Fri, Sep 14 2007

In 1971I was diagnosed with Sarcoidos [sarcoidosis]. I have a problem with my lungs, eyes (I am legally blind in both eyes, have a heart murmur, problem with both lower legs, and a hearing deficit.

I also have hypertension, and must take medication for my blood pressure daily. In 2001, they found a malignant tumor on my left kidney, and had 1/2 of left kidney removed due to a large tumor they found.

I am no longer able to drive a car, because of my eyes being deficient, and because my hearing deficit is bad at times.

I live alone, but because of the envolment of the sarcoidosis envolving my lungs, I am unable to use most cleaning agents, and must have outside helpers to do any cleaning of my apartment for me.

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September 2007

  • Don’t Let Sarcoidosis Control You - by DBM - (Fri, Sep 14 2007)
    I’ve had the sarcoidosis for over 10 years . I’ve been so sick that I was told to find care for my children. My husband died two year in my arm after diligently caring for me. I was now on my own.I know about the stiff joints, back pain, painful lungs and legs, lack of oxygen.sleepless scary days and nights. [more..]
  • living with sarcoidosis - by Elizabeth - (Fri, Sep 14 2007)
    In 1971I was diagnosed with Sarcoidos [sarcoidosis]. I have a problem with my lungs, eyes (I am legally blind in both eyes, have a heart murmur, problem with both lower legs, and a hearing deficit. [more..]
  • - by tess - (Sun, Sep 09 2007)
    My boyfriend became very ill last May (2007 ). He was complaining of pain in his leg, he was diagnosed with DVT (deep vein thrombosis) by his doctor and prescribed with antibiotics and anticoagulants. While trying to recover from the DVT he developed persistent cough, weakness and palpitations and was again found himself so ill that he was rushed to the emergency room 3 times in a month. [more..]
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