Living with SarcoidosisThis section is a place to share stories about Living with Sarcoidosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story. In honor of National Cancer Survivors Day on June 1, 2008, we asked you to share your stories about surviving cancer. Read the inspiring stories we received or share your survival story and help others in the fight against cancer. To quickly access health information from your website's browser, download sarcoidosis (spelled it right :)) I was diagnosed with sarcoidosis ~5 years ago. I had a biopsy performed on tissue after having a nose surgery to help with sinus and breathing problems (Hindsight 20/20 probably related to the sarcoidosis). At the time, I was 30 but going back I can think of more than a few symptoms that match up. At 19 I developed lesions on my arms and trunk. They would go away after some months but would show up elsewhere later. My doc at the time just told me it was the winter itch and I had sensative skin. During a green card health screening in the states I was notified blemishes in my lungs even though the tuburculosis test showed negative. There have been some periods where I have difficulty breathing, but mostly they were when I was younger and smoked. I quit cold turkey at 24 because I was having such a hard time breathing. Looking back, it was probably the combination of the smoking an the sarcoidosis in the lungs. I’ve had more recent xrays and the lungs look clean now. These days the problem is numbness in extremitys and face. Just on the left side though. Comments
July 2007
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