Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Sarcoidosis

This section is a place to share stories about Living with Sarcoidosis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


sarcoidosis (spelled it right :))
by: Stephen on Tue, Jul 17 2007
Facebook Twitter

I was diagnosed with sarcoidosis ~5 years ago. I had a biopsy performed on tissue after having a nose surgery to help with sinus and breathing problems (Hindsight 20/20 probably related to the sarcoidosis).

At the time, I was 30 but going back I can think of more than a few symptoms that match up. At 19 I developed lesions on my arms and trunk. They would go away after some months but would show up elsewhere later. My doc at the time just told me it was the winter itch and I had sensative skin.

During a green card health screening in the states I was notified blemishes in my lungs even though the tuburculosis test showed negative. There have been some periods where I have difficulty breathing, but mostly they were when I was younger and smoked. I quit cold turkey at 24 because I was having such a hard time breathing. Looking back, it was probably the combination of the smoking an the sarcoidosis in the lungs.

I’ve had more recent xrays and the lungs look clean now. These days the problem is numbness in extremitys and face. Just on the left side though.


Facebook Twitter

Comment on this

Comments
    There are currently no comments.

July 2007

  • sarcoidosis - by Dianne - (Sun, Jul 29 2007)
    I have recently been diagnosed with sarcoidosis after suffering for a long term with breathlessness. No one listened to me until an x ray showed what it was. [more..]
  • sarcoidosis - by yavonne - (Wed, Jul 25 2007)
    My husband was diagnosed with sarcoidosis on 2/1/2006 after being exposed to concrete and its additives. He has seen a rhumatologist [rheumatologist],cardiologist,pulmanologist [pulmonologist],thoracic doctor and his family physician. His symptoms went away for about 4 months and then came back. [more..]
  • sarcoidosis (spelled it right :)) - by Stephen - (Tue, Jul 17 2007)
    I was diagnosed with sarcoidosis ~5 years ago. I had a biopsy performed on tissue after having a nose surgery to help with sinus and breathing problems (Hindsight 20/20 probably related to the sarcoidosis). [more..]
  • Sarcoidosis - by Omar - (Fri, Jul 13 2007)
    I’m a 56 year old male and I was diagnosed with neurosarcoidosis in 1986 following a nocturnal seizure I was put on steroids. My doctor said that steroids can cause blindness but the low dosage I was on should be OK. [more..]
  • Sarcoidosis - by Marty R - (Tue, Jul 10 2007)
    My husband is 56 years old and was diagnosed with sarcoid 8yrs ago, and it went into remission, about 3 yrs after, but came back worse than ever. [more..]

Archives:

  • 2009 January February March July August October November
  • 2008 February March April May July August September October November December
  • 2007 May June July August September October November
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)