Living with Sarcoidosis

I was diagnosed with sarcoidosis a little more than a year ago and had to start steroids (prednisone) within a couple of months because I experienced arthralgia (pain in all the joints of the body). I’d become immobile and had to be helped while walking, getting up while sitting or lying down etc.

I also had other complaints like arythma nodosum (lumps on my legs), palpitation, redness of eyes, hot flashes, redness of face, tinitus and severe pain in ankles (which continues to this day, though with less severity). Within a week of starting prednisone i was on my feet again and all my symptoms had disappeared. My doc started me off with 40 mg per day. Now a year later, I’m down to 5 mg on alternate days. I’d been working as a school administrator (very actively) throughout all this time and apart from occasional aches, pains and discomforts (and a little weight gain), have had no major problems.

So if you are diagnosed with this disease, don’t worry. Just find a competent and caring doctor and follow his/ her advice. Good luck and chill!!!