Living with EmphysemaThis section is a place to share stories about Living with Emphysema Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download “Living to die, Dying to live” 
At the beginning of my path of being a chronically ill man, I had a this cannot happen to me attitude.I was 100% in denial.It took me over a year from my first x-ray to even go back to the doctors again.When I did go back,the Dr. told me he wanted to do a bunch of computer type tests on me and they did everything from take my blood to make me blow in this hose and keep on blowing keep on blowing keep on blowing till I was white in the face.I kept going back for about 6 months doing tons of testing.Well,he came up to me with a serious look on his face and told me that I had a rather severe case of Emphysema As a matter of fact he told me that my FEV1 was less than 30% and he put me on oxygen at 2 1/2 liters per minute and if I am up and about to turn it to 3-3 1/2 LPM.Well,that was 9 years ago and my FEV1 is at 15% and my oxygen Saturation is around 65% and sometimes it is 80%.I am not sure about how long I have left,but there is and has been one question that nobody seems to be able to answer.If you are living to die,or you are dying to live,What happens to one at the moment of your death?Is it extremely painful?Do you pass away in a calming sleep?Or do you go down kicking and fighting in gasping for air?Does anyone out there have this info???
September 2009
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