Living with Cystic Fibrosis

Hi Everyone,

Here is my story. I hope someone will be able to read this and be careful. My mom was diagnosed with Pulmonary CF. She was given about a year to live without a double lung transplant. She was on a waiting list and finally went through the surgery. After the surgery she was taking about 40 pills a day, About 4 months after surgery she passed away. She complained to the doctors that her feet were swollen every time she went to the hospital. She was at the hospital 2-3 days before she died, they x-rayed her legs, but not her entire body and she was told to go home. One night her stomach started hurting, I called the ambulance and she was taken back to the hospital. She was kept, but since all the forms were at another hospital. They were waiting, she was hungry. She told me many times. They didn’t even have an ambulance to take her to the main hospital.

To make a long story short…What was happening was that she had an ulcer in her stomach that was burst and she was slowly going into a coma that no one in the hospital was aware. She died hours later. Ulcers can be caused by many things, but you are taking a lot of pills, you must eat properly to prevent the acid from the medication.

Please, if you are living with CF or if you have any surgery. PLEASE TAKE CARE OF YORSELF. IF YOU FEEL SOMETHING IS WRONG. TELL THE DOCTORS TO MONITOR YOU. DO NOT TAKE “NO” FOR ANSWER.

I hope we find a cure for CF. We HAVE to find a cure. No more families can go through what we had to go through.

I miss her so much everyday. Rest in Peace mommy.