Living with an Undiagnosed ConditionThis section is a place to share stories about Living with an Undiagnosed Condition. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story. In honor of National Cancer Survivors Day on June 1, 2008, we asked you to share your stories about surviving cancer. Read the inspiring stories we received or share your survival story and help others in the fight against cancer. To quickly access health information from your website's browser, download My 2 year old baby boy Joie my 2 year old has had a diffcult life already. when he was about 9 months old he started to decline. His head was to small,he was walking weird,he wasnt behind in motor skills,and his legs uppr legs were realy big. He was in speech and physical therapy for awhile. Now that he’s almost 3 years old he has had a muscle biopisy,an EEG, 3 blood tests,and a MRI His CPK levels are elevated and his EEG was abnormal. I am still awaitin the results of the muscle bio and the rest of the test were ok.My son is still developmentally delayed and I still dont know whats wrong with him. I’m so tired of worrying I WANT to KNOW!!! Comments
February 2008
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